About Us
Our mission
to advance policy solutions that improve the lives of people affected by alpha-gal syndrome
Who we are
We are an army of people with alpha-gal syndrome who are tired of waiting for change and are ready to be the change.
Our organization
Alpha-gal Alliance Action Fund is the ONLY nonprofit dedicated solely to advancing policy that benefits people with alpha-gal syndrome.
Alpha-gal Alliance Action Fund is the advocacy partner of Alpha-gal Alliance. As a 501(c)(4) nonprofit organization, the Alpha-gal Alliance Action Fund engages in various advocacy and political activities for which Alpha-gal Alliance, a 501(c)(3) organization, faces legal limitations.
Please note that contributions to the Alpha-gal Alliance Action Fund are NOT tax-deductible, and a portion may be used for political activities.
Leadership
Staff members Sharon and Julie do not receive compensation; they volunteer their time to support and run the Alpha-gal Alliance Action Fund.

Julie Sibbing
Co-founder, Policy Advisor
Julie's bio
Julie is co-founder of Alpha-gal Alliance. Sibbing has worked on conservation policy in Washington, DC for over 25 years and is currently Associate Vice President for Land Stewardship at the National Wildlife Federation. She holds a B.S. in Life Sciences and a Masters in Forest Ecology, both from the University of Illinois. An avid outdoorswoman, Ms. Sibbing contracted alpha-gal about 24 years ago.

Sharon Forsyth
Co-founder, Executive Director
Sharon's bio
Sharon is the founder of Alpha-gal Alliance and co-founder of Alpha-gal Alliance Action Fund. After being diagnosed with alpha-gal syndrome in 2019, Sharon searched for information that would help her navigate this complex condition but found little. Not wanting others in the alpha-gal community to experience the same frustration, she organized the Alpha-gal Syndrome Awareness Campaign. With the campaign team, she created the Alpha-gal Information website, the most extensive resource on alpha-gal syndrome.
Sharon has been involved in conservation most of her life. She was director of Conservation International’s Africa Program, president of the Beneficia Foundation, and served on the boards of American Bird Conservancy and Bat Conservation International. Prior to her conservation work, Sharon was a Peace Corps volunteer in Botswana, where she taught agriculture. She holds a BA in biology and economics.
Sharon contracted AGS while pursuing her interest in natural history. She lives in Washington, DC with her biologist husband, Adrian Forsyth, who also has AGS.
Board
The Alpha-gal Alliance Action Fund is governed by a volunteer board.

Alexander Peabody
Treasurer
Sandy's bio
Alexander C. Peabody, PLS, affectionately known to colleagues and friends as “Sandy,” serves as the Treasurer of the Alpha-gal Alliance Action Fund, where he brings both professional expertise and personal conviction to the fight for greater awareness and advocacy around Alpha-gal syndrome. Diagnosed in 2024, Sandy quickly recognized the urgent need for education and support—especially within the land surveying profession.
A licensed professional land surveyor with over three decades of experience in the Charleston, South Carolina region, Sandy is widely respected for his precision, integrity, and tireless advocacy. His career has been defined not only by technical excellence but by his commitment to elevating the profession. He is a Past President of the South Carolina Society of Professional Land Surveyors (SCSPLS) and currently serves as the South Carolina Director to the National Society of Professional Surveyors (NSPS). In these roles, Sandy has championed ethical standards, mentored emerging professionals, and helped shape policies that strengthen the surveying community nationwide.
Beyond his professional achievements, Sandy is a devoted husband and proud father of two, whose love for the outdoors has always been a natural extension of his work. Whether camping, hunting, fishing, or simply exploring the land, his connection to nature has deepened his understanding of the terrain he surveys—and now, it also informs his personal journey with Alpha-gal syndrome. He approaches life with Alpha-gal with the same resilience and optimism that has defined his career.
Whether he’s in the field with a land surveying transit or in the boardroom shaping policy, Sandy remains a steadfast steward of both the Land Surveying Profession and the Alpha-gal community, committed to building a healthier, more informed future for all.

Sharon Forsyth
Chair
Sharon's bio
Sharon is the founder of Alpha-gal Alliance and co-founder of Alpha-gal Alliance Action Fund. After being diagnosed with alpha-gal syndrome in 2019, Sharon searched for information that would help her navigate this complex condition but found little. Not wanting others in the alpha-gal community to experience the same frustration, she organized the Alpha-gal Syndrome Awareness Campaign. With the campaign team, she created the Alpha-gal Information website, the most extensive resource on alpha-gal syndrome.
Sharon has been involved in conservation most of her life. She was director of Conservation International’s Africa Program, president of the Beneficia Foundation, and served on the boards of American Bird Conservancy and Bat Conservation International. Prior to her conservation work, Sharon was a Peace Corps volunteer in Botswana, where she taught agriculture. She holds a BA in biology and economics.
Sharon contracted AGS while pursuing her interest in natural history. She lives in Washington, DC with her biologist husband, Adrian Forsyth, who also has AGS.

Andy Birkey
Secretary
Andy's bio
Andy Birkey is communications expert with over 20 years of multifaceted experience in journalism, social media, and strategic communications for nonprofit sectors. His career has been committed to leveraging creative storytelling, analytics-driven social marketing, and strategic outreach to empower organizations and drive social change. He currently runs and owns Andy Birkey, LLC, a full service creative communications business.
He’s also a photographer and wildlife biologist, specializing in invertebrate biology, with a degree in forest ecology. He’s conducted invertebrate wildlife surveys for local, state, and national entities.
He was diagnosed with Alpha-gal Syndrome in 2020, and had symptoms for at least a decade prior. He currently runs an Alpha-gal safe recipe blog called Feathers and Fins (FeathersFins.com) where he recreates the recipes of his childhood, especially the German and Swedish dishes his grandma would make on the farm in central Illinois.

Meg Muckenhoupt
Writer/Board member
Meg's bio
Meg Muckenhoupt is a writer and editor with more than 20 years of experience in journalism, web development, and nonprofit and pharmaceutical communications. She has published content on topics ranging from urban planning and landscape history to antibiotic-resistant bacteria and rare diseases. Her career has been devoted to distilling complex medical and historic topics into clear, understandable text so that people can make better decisions.
Meg is also the author of numerous newspaper and magazine articles and six books, most recently The Truth About Baked Beans: An Edible History of New England. She is an avid birder, holds a certificate in field botany from the Native Plant Trust, and volunteers as a naturalist with the Appalachian Mountain Club.
Meg was diagnosed with Alpha-gal Syndrome in 2023. She can no longer eat the salt-pork-based Boston baked beans from her book’s title. She lives in Lexington, Massachusetts, where awareness of Alpha-gal Syndrome is gradually growing due to the explosion of cases on Martha’s Vineyard, a popular local vacation destination.

Rebecca Reinhardt
Board member
Rebecca's bio
Rebecca Reinhardt is an attorney based in rural Southern Illinois, where she focuses her practice on family law and estate litigation. She began her career in Pennsylvania, practicing for nine years before returning home to Southern Illinois in 2012. Over the course of her career, she has presented on a range of legal issues for the Pennsylvania Bar Association and has been published in both the Pennsylvania Solo and Small Firm Section News and the Illinois Bar Journal.
Beyond her legal work, Rebecca is a proud mother of three daughters, whose energy and activities keep her on her toes. She enjoys running, hiking, camping, and nearly anything that allows her to spend time outdoors, as well as immersing herself in a good book.
Rebecca’s personal journey with Alpha-gal syndrome began after years of unexplained medical issues and repeated tick bites that went unconnected by healthcare professionals. Following another tick bite in 2022, she advocated for her own testing and finally received a diagnosis. Recognizing the impact Alpha-gal can have on active lifestyles, she founded The Alpha Gal Athlete, a Facebook support group dedicated to fostering community and awareness.
She is passionate about advancing education on Alpha-gal syndrome within the medical community and advocates for stronger food allergen labeling to improve safety and quality of life for those affected.
Patient Advisory Council

Dee Nash
Advisory board member
Dee's bio
Founder, Red Dirt Ramblings
Dee Nash is a passionate gardener and award-winning author based in Oklahoma. She overcame bad soil, strong winds, and even a wildfire that swept through her neighborhood. Now, she’s facing the challenges of alpha-gal syndrome while still managing her large rural garden and garden coaching business.
For more information, see her Red Dirt Ramblings website featuring alpha-gal syndrome.

Leisa Moten
Advisory board member
Leisa's bio
Leisa Moten, co-founder and advisor of ALIVE Animal Services Group, Inc., a 501(c)(3) non-profit established in 2012 as an animal advocacy group to give help and hope to neglected, abused, abandoned and those slated for euthanasia animals in the rural mountains of Southern West Virginia.
Leisa’s alpha-gal syndrome journey began in 2017 when her husband began having unexplained rashes, severe GI distress, and anaphalaxis several times a week. He was diagnosed with alpha-gal syndrome through personal research and insistence that his doctors test him. Then, in 2022, Leisa presented with crippling arthritis, heart palpitations after consuming dairy, and middle of the night panic attacks. Tests revealed that she, too, had alpha-gal syndrome. Because of the difficulties and delays in care alpha-gal syndrome caused during her husband’s battle with terminal colon cancer and a heart attack requiring Stent placement Leisa feels passionate about legislation making Alpha-gal a reportable condition in West Virgina and a mandatory declared allergen in food and medical products.
Contact Leisa: [email protected]

Debbie Nichols & Candice Matthis
Advisory board member
Candice and Debbie's bios
Founders, Two Alpha Gals
The mission of Two Alpha Gals is to serve as guides to empower others to navigate and live a fulfilled life with or without AGS. We strive to help each other develop a new normal by increasing awareness, providing access to supportive research, inspiring advocacy, and cultivating community.
Candice and Debbie are taking a lead in in advocating for policy solutions for the alpha-gal community in Virginia. They participated in the Virginia Tick-borne Disease Working Group and provided key support for HB 93, a bill written by Del Otto Wachsmann that would make alpha-gal syndrome a reportable condition in Virginia.
Contact Debbie and Candice: [email protected]
Collaborators
Alpha-gal Alliance Action Fund works with other organizations, experts, and those affected by AGS to develop and advocate for practical, effective policy solutions.
Our sister organization
Alpha-gal Alliance
Alpha-gal Alliance is our sister organization. It is a separate but affiliated 501(c)(3) nonprofit organization which promotes the health and well-being of people with alpha-gal syndrome by advancing awareness and understanding, catalyzing research, building capacity, and directly supporting the alpha-gal community. Donations to Alpha-gal Alliance are tax-deductible.
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