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The latest alpha-gal advocacy news

Fresh off the press!

March 26, 2024

Wachsmann’s bill lauded for predicted positive impact against tick-borne disease

By Terry Harris, Mar 26, 2024
The Sussex-Surry Dispatch

Last week, Wachsmann explained how the expected signature by the governor will signal the culmination of a fight by advocates for requiring reporting infections of the disease, which is conservatively estimated to affect as many as 450k people in the US.

When asked what prompted him to present the bill addressing a malady which currently is so little known, Wachsmann said that besides being “a life-altering and sometimes fatal allergy which the CDC has identified as a growing threat to public health,” the number of sufferers of AGS is spiking upward.

He then revealed that he personally suffered from the disease.

Advocates laud passing of bill to track alpha gal

By Heather Zwicker, Mar 15, 2024
Fairfax County Times

The Alpha-gal Alliance Action Fund and Two Alpha Gals lauded the final passage in the Virginia Senate of HB 93, a bill that directs the Virginia Board of Health to add alpha-gal syndrome (AGS) to the list of diseases that must be reported to the Centers for Disease Control and Prevention.

Alpha-gal syndrome is a life-altering and sometimes fatal allergy, which the CDC has identified as a “growing threat to public health,” according to Sharon Forsyth, co-founder of the Alpha-gal Alliance Action Fund. The CDC website states Evidence suggests that AGS is primarily associated with the bite of a lone star tick in the United States, but other kinds of ticks have not been ruled out. Other tick species have been connected with the development of AGS in other countries.

National

February 23, 2024

Spanberger, Garbarino Lead Bipartisan Bill to Track & Report Tick Bite-Associated Condition, Alpha-Gal Syndrome

Feb 23, 2024

The Spanberger-led Recognize AGS Act would direct the U.S. Secretary of Health and Human Services (HHS) to include AGS on the Nationally Notifiable Disease List to bolster coordination and surveillance efforts critical to treating and preventing AGS. While AGS is currently excluded from the Nationally Notifiable Disease List, other tick-borne diseases — like Lyme Disease, Anaplasmosis, and Babesiosis — are currently on the list.

February 15, 2024

Garbarino, Spanberger Introduce Legislation To Better Monitor Tick-Born Illness That Triggers Red Meat Allergy

February 15, 2024

Today, Congressman Andrew R. Garbarino (R-NY-02) and Congresswoman Abigail Spanberger (D-VA-07) announce the introduction of the bipartisan Recognize AGS Act which would allow for greater monitoring and reporting of instances of Alpha Gal Syndrome (AGS) by the Center for Disease Control (CDC). Representatives Glenn Thompson (R-PA-16) and Eleanor Holmes Norton (D-DC) also cosponsored this legislation.

“According to the CDC, about 4% of AGS cases in the United States are found in Suffolk County, making eastern Long Island an epicenter for this disease.”

July 28, 2023

Geographic Distribution of Suspected Alpha-gal Syndrome Cases — United States, January 2017–December 2022

By Julie M. Thompson, DVM, PhD et al., July 28, 2023
CDC Morbidity and Mortality Weekly Report (MMWR)

Highlights:

  • AGS is a growing clinical and public health concern for persons in the United States
  • Each year, 13,371–18,885 persons received a positive test result.
  • 450,000 persons in the United States might have been affected by AGS since 2010.
  •  The number of AGS cases in the United States is predicted to increase during the coming years.
  • There is critical need for
    • community education targeting tick bite prevention to reduce the risk for acquiring AGS,
    • HCP education to improve timely diagnosis and management, and
    • improved surveillance to aid public health decision-making.

July 28, 2023

Health Care Provider Knowledge Regarding Alpha-gal Syndrome — United States, March–May 2022

By Ann Carpenter, DVM et al.,  July 28, 2023
CDC Morbidity and Mortality Weekly Report (MMWR)

Highlights:

  • 1,500 healthcare providers (HCP) who responded to a nationwide survey had limited AGS knowledge: 42% were not aware of AGS, and another 35% were not confident in their ability to diagnose or manage AGS patients.
  • Limited HCP knowledge about AGS is concerning, especially because the number of suspected cases is increasing, and the range of the tick primarily associated with this condition is expected to expand.
  • Improved HCP education might facilitate a rapid diagnosis of AGS, improve patient care, and support public health understanding of this emerging condition.

Virginia

Mar 11, 2024

Statement from Delegate Otto Wachsmann on the passage of HB 93, “The Alpha-gal Syndrome Bill”

By Otto Wachsmann, Mar 11, 2024
Brunswick Times-Gazette

RICHMOND – Delegate Otto Wachsmann (R-83) released the following statement on the Senate passing HB 93.

“I am pleased that the Senate passed HB 93 with unanimous bipartisan support. Alpha-gal Syndrome is a growing problem in Virginia and needs additional understanding. Having the Virginia Department of Health create a process of reporting new cases of alpha-gal syndrome will help us better determine the prevalence and hot spot locations throughout the Commonwealth. I am most thankful for all the support for HB 93. This legislation could not have been possible without the assistance from state and national advocacy groups who helped us. I hope that this important legislation will be signed into law by Governor Youngkin,” said Delegate Wachsmann.

Feb 7, 2024

Otto’s Richmond Wrap-Up Week #4

By Delegate Otto Wachsmann, Feb 7, 2024
Brunswick Times-Gazette

 The alpha gal bill (HB 93) relating to the red meat allergy transmitted by ticks has passed subcommittee, full committee and the Appropriations Sub-Committee unanimously. This places Virginia as a leader in assisting those impacted by this disorder. 

Jan 12, 2024

TICK TROUBLE Tick bite-associated condition, alpha-gal, considered a 'growing concern' in Virginia

By Samuel B. Parker, Jan 12, 2024
Richmond Times Dispatch

An emerging, tick bite-related allergic condition is raising concern among state health experts, prompting a Virginia legislator to introduce a bill requiring the Virginia Department of Health to track and report cases to the Centers for Disease Control and Prevention.

Arkansas

October 7, 2023

OPINION | MIKE MASTERSON: Alpha gal spreading

By Mike Masterson, October 7, 2023
Arkansas Democrat Gazette

Jennifer Burton tells me the state’s Department of Health has been quietly working hard to become the nation’s first state to make Alpha-Gal a mandatory reportable condition for physicians as of Sept. 11, 2023. Presently, the Centers for Disease Control and Prevention only requires voluntary reporting. “This is a huge step forward in tracking the actual number of those afflicted with AGS in Arkansas and hopefully help everyone understand it’s caused by a tick bite,” Jennifer said.

September 20, 2023

State of Arkansas becomes the 1st state to make Alpha-gal Syndrome a MANDATORY reportable condition

By Jennifer Burton, September 20, 2023

On 9/11/23 the State of Arkansas took the lead to become the 1st state to make Alpha-gal Syndrome a MANDATORY reportable condition – meaning doctors will be required to report Alpha-gal Syndrome patients. Currently the CDC & NJ are voluntarily reporting.

Maine

January 24, 2024

Patients push for requiring Alpha-Gal Syndrome cases be reported to Maine CDC

Vivien Leigh, January 24, 2024
NEWS CENTER Maine

August 25, 2023

Patients with meat allergy linked to tick bite want cases tracked in Maine

Vivien Leigh, August 25, 2023
NEWS CENTER Maine

While experts at the University of Maine Tick Lab say the number of Lone Star ticks found in our state is minimal, some patients want the Maine CDC to track cases of Alpha-Gal among Mainers.

Tennessee

January 7, 2024

When a Lone Star Tick bit her in Nashville, she struggled to find resources for Alpha-gal Syndrome patients

By Hannah McDonald, Jan 7, 2024
News Channel 5, Nashville

GOODLETTSVILLE, Tenn. (WTVF) — The list of reportable diseases in Tennessee was just updated, and not on it again this year is Alpha-gal Syndrome.

The strange and potentially life-threatening food sensitivity is a tick-borne disease. The Lone Star Tick carries the disease, which leads to a serious food allergy to red meat products. It’s hard to know how many people are affected, however, a recent CDC report estimates that from 2017 to 2022, there were more than 90,000 documented cases in the country.

 

New York

December 13, 2023

HOCHUL SIGNS DEER HUNTING PILOT BILL FOR SOUTHOLD

By Beth Young, Dec 13, 2023
East End Beacon

New York Governor Kathy Hochul has signed a bill to create a Southold pilot deer management program in the works since the summer of 2022.

“Deer play vital roles in the natural and cultural environment of New York. However, the overabundance of deer in many parts of the state is causing increasing problems, including deer-vehicle collisions on roads, deer eating crops in agricultural settings, and the prevalence of tick-borne illnesses such as Lyme disease,” said Governor Hochul in her approval memo for the bill. “Currently deer population levels in most areas are managed primarily through recreational hunting. Over the years, the Department of Environmental Conservation has been working with stakeholders to find ways to increase the effectiveness of population management strategies in areas with overabundance.”

 

Minnesota

September 7, 2021

Dokken: Mysterious Tick-Borne Allergy Hits Northwest Angle Resident Paul Colson

By Brad Dokken, Sep 7, 2021
Grand Forks Herald

Little is known about the prevalence of alpha-gal syndrome in Minnesota and North Dakota, since it isn’t a reportable condition in either state. Lone Star ticks have been documented in both states, but that’s where the knowledge base ends.

“We have heard occasional reports of (alpha-gal syndrome) in Minnesota, but don’t actually have any data we could share,” said Doug Schultz, an information officer for the Minnesota Department of Health. “It’s a fairly complicated allergy, and there is definitely a lot still to learn about exactly why it happens.”

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